Loss

Olivia passed away this afternoon.  Her PDA ligation was a difficult procedure and Olivia did not tolerate it well.  The poor little bean just could not handle it!  We are infinitely grateful for all of the prayers, well wishes, love, gifts, cards, EVERYTHING we have…

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A Good Cause

In the midst of all the chaos, Mike and I have decided to actively support programs that support the families of and children with significant medical needs.  Enter Extra Life, the video game marathon that supports some of the best children’s hospitals in the country….

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Big, Scary Words

  The bone marrow sample results came back.  None of the samples viewed showed evidence of the cells needed to make platelets.  While they have sent out the samples for genetic testing, the hematologists have informed us they believe Olivia has an EXTREMELY rare condition…

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The Good, The Bad and The Ugly

The Good: Olivia’s doctors decided to perform the laparotomy to search for possible areas of infection.  The surgeons found that her intestines look healthy!  This is EXCELLENT news!  She still could have strictures down the road or possibly have a NEC infection, but we are…

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Uncertainty

After speaking with the surgeon team and the hematologists, a plan has been devised.  They are exploring a condition called Neonatal Alloimmune Thrombocytopenia (NAIT) as a possible reason for Olivia’s decreasing platelet levels.  They are going to attempt a treatment for this condition and see…

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Weeeeee!!!!!!

A few years ago, I took Joe on a vacation in Florida.  He chose a day trip to Universal Studios to experience the wonderful world of Harry Potter.  It was him and me, a special Mommy-son date of the best kind.  We drank butterbeer and…

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No Go

The PDA ligation has been postponed due to another precipitous drop in Olivia’s platelet count.  Yesterday, it had been at 78.  This morning, it was at 37.  The team decided to collect samples for testing of specific fungal and bacterial infections.  Olivia was placed back…

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Matters of the Heart

Olivia is scheduled to have surgery Monday afternoon dependent upon her platelet levels.  Today, those levels had dipped precipitously yet again.  She was given another platelet transfusion.  I assume she may get another prior to her surgery.  A brain ultrasound came back with no new…

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Double pounder!!!

      Yesterday, Olivia hit a milestone–two pounds! Mike and I have recounted how large the babies all seemed in comparison to Olivia when we first joined the NICU.  She is now the size of those babies we thought appeared so large!  This is…

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Buckle Up

Once upon a time, I quantified a luxury by its decadence.  To me, luxury was an afternoon mani-pedi or a nice glass of wine.  Luxury has become a day in the NICU without an “event” of which we have had four full weeks.  While the…

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